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The Spread of Lyme Disease

updated December 19, 2010

Dr. Ernie Murakami, MD is the founder of the Dr. E. Murakami Centre for Lyme Research, Education & Assistance and has made it his life's work to further educate and treat Lyme in Canada

L
yme disease is the most rapidly spreading vector-borne disease in the world.

The medical world is divided with one group saying that it is rare, easy to diagnose and easy to treat, and the other saying it is a difficult diagnosis because of the negativity of the ELISA test and the lack of medical education of medical students, family practitioners and specialists.

There is an urgent need for making the public and the medical world aware of this since there is an unexplained Lyme denial problem prevalent in our medical association.

I have seen many suffering from arthritis, mental fog, and severe fatigue and most of these patients have gone undiagnosed to the present day. My personal feeling is that there is a high percentage of Lyme and vector-borne disease in these patients who are suffering chronically and resorting to other forms of pain relief such as alcohol, street - and prescribed - medications. Many people are suffering in every walk of life in both urban and rural areas of Canada.

To confirm my belief in the prevalence, please view the following maps of the world, of North America and of British Columbia.

The map below of global prevalence by the World Health Organization reveals the areas in the world that are infested with Lyme disease in red colouring, north and south of the 49th parallel. Note that Alaska, which is more northerly than most of Canada, is completely red, stretching below the 49th parallel and into the United States.

a deer tick known to spread Lyme disease

dr. ernie murakami

on related topics

There are two spots on the map that indicate BC and Ontario having recorded more cases, but I believe this is from my testing of patients from American labs and another physician, an infectious diseases specialist, in Ontario who is treating Lyme disease openly.

 

World Health Organization Global Prevalence Map

Lyme Disease - World Health Organization Global Prevalence Map

Eurosurveillance Global Incidence Graph

incidence of Lyme Disease per 100,000 population

International studies of global incidence of Lyme disease per 100,000 population indicates that Canada is 0.115 per 100,000, contrasted with 36 per 100,000 for Czech Republic is which on a similar latitude as Canada.

The next map indicates a sharp demarcation of diminished Lyme disease by the ELISA test and in Canada this represents about 2 cases per million; total of about 80 cases in 2008 as per Public Health Agency Canada, yet immediately across the border 49th parallel there is in the US 70 cases per million which is mathematically an impossibility. There are two explanations: (1) that the Americans are wrong about the statistics from their CDC in Atlanta or (2) more onerous and neglectful, our testing methods are inadequate as are diagnostic acumen by the physicians of Canada.

 

US CDC Lyme Disease Risk Map

US CDC Lyme Disease Risk Map

Canada averages about 6 cases per year per province by the ELISA test, yet across the border every north central, north eastern states reports an average of 1,000 cases annually.

There are doctors who vehemently deny the existence of Lyme disease in BC and Canada despite the evidence recorded on 3 charts or graphs of studies done in BC in the early 1990s.

The following is a chart compiled by Drs Satwant Banerjee (BCCDC) and LaVerne Kindree who randomly tested ticks throughout British Columbia and found live spirochetes of Borrelia burgdorferi.

Lyme Disease - map of randomly tested ticks throughout British Columbia

The following chart records the first 8 cases in British Columbia serologically positive by the ELISA and Western Blot test at BCCDC.

Burns Lake, Saltspring Island, Galiano Island, Kootenay Lake, Cortes Island, Oliver, Nanaimo and Agassiz. My first case was #8 in Agassiz in 1994.

chart of confirmed Lyme Disease cases in British Columbia

The next chart reveals ticks with nucleic acid from Borrelia burgdorferi spirochetes found in domestic and wild animals including lizards.

chart of ticks in nucleic acid

Lyme Disease in the US 2008, source US CDC: http://www.cdc.gov/ncidod/dvbid/Lyme/ld_UpClimbLymeDis.htm

 

reported cases of Lyme Disease by year

The US CDC has recently published 2008 cases of Lyme disease as being 35,198 reported and an astonishing 422,376 estimated actual cases using an error factor of 12x. It is a well known fact that when the US has 422,376 cases then Canada will have approximately 10% yet only 80 cases are reported for the year 2008 by Public Health Agency of Canada. The estimated actual cases in Canada must be over 40,000.

New York and Connecticut report up to 90% of ticks infected which means with almost every tick bite there is a high probability of contracting Lyme disease and/or co-infections. As the world warms with climate change, more ticks will survive. More ticks add to the likelihood of being bitten plus the fact more time is spent outdoors.

The validity of Infectious Diseases Society of America (IDSA) guidelines on Lyme disease has been challenged by Connecticut Attorney General Richard Blumenthal and the IDSA has been ordered to review and revise their guidelines under a new panel. This review panel has until the end of 2009 to render any changes.

The courts in six American states have now legislated, or are legislating, laws that will prohibit the investigation or harassment of all medical doctors who are treating chronic Lyme disease.

The disease started in eastern Canada and spread right across the country and BC represents the latest province to become endemic for Lyme disease. Numbers have magnified tremendously and probably we are now facing about 50% of ticks being infected with Lyme and co - infections.

Awareness of this rapidly growing disease is paramount and the doctors must remove this great divide and the fear of our skeptical peers which prevents the diagnosis and treatment of Lyme disease early and adequately.

We in the medical profession around the world should be resolving this great divide amicably and professionally ourselves as we have done with all other major infectious diseases in the past. There is no time for complacency as was experienced with the AIDS epidemic in the early 1980s and we must prepare for the rapidly approaching pandemic of Lyme disease.

 

update

 
There has been continuing educational program and visits to the MB Health in Oct 2009 and Nov 2010. The greatest progress has been that Mannitoba Health has given a letter to all doctors in the province that the treatment of Lyme disease is on a clinical basis and not on a lab test result. Many cases of chronic LD require long term treatment has also been addressed by MB Health, and not 30 days as recommended by IDSA guidelines. All parks in the province of Manitoba have Lyme awareness and cautionary signs posted. At the last meeting, Nov 2010, the MB Deputy Minister of Health was concerned why doctors were not treating in the province and that people were going to the US. In another case, past Manitoba NDP member was refused IV therapy at the hospital where she was given a requisition by her doctor. She was turned down by a hospital doctor. MB Deputy Minister of Health plans to contact Manitoba College of Physicians and Surgeons to clarify some of these matters. There has been lecturing to doctors in acute hospitals and at conferences. At one conference Sept 26, of the 120 NDs who attended 26 left their names wanting to learn more about LD. The biggest thing is that they have their prescription writing privileges from the province of BC Dept of Health. There is now a supply of physicians, both medical and naturopathic, available in BC to patients to have treatment in BC, and this includes some other parts of Canada such as Halifax. Two service clubs, one from Lake Echo near Halifax and the Hope BC Lions Club are keen to have the information of the spread of LD made aware to the Lions organization. The Hope Lions Club and the Echo Lake Lionesses and Lions Club want me to speak at their respective provincial annual meetings, one in Halifax and one in BC. These are tentative motions. There appears to be a greater number of patients bringing their stories to the general public through the media. It is my personal wish that the medical profession would get together to resolve this issue.
 

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How do we overcome the "medical divide" about Lyme disease treatment and epidemiology since it is the patients who are suffering, some of whom have committed suicide because they cannot get medical help? - Dr. Ernie Murakami

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Comments (9)
9 Saturday, 19 May 2012 16:17
Shelyna Rice, NP
My 10 year old son who frequently hunts in Arkansas with his father, developed fever, neck pain, joint aches and malaise. The infectious disease specialist in this area insisted that it was viral illness that would resolve on its own. I diagnosed and treated him for Lyme disease. He is doing well and is back to being his energetic self. I implore all primary care providers to include Lyme disease in the differential when the presenting case is similar to the one I just described. If I had relied on the infectious disease specialist my child's life would have been ruined. I urge you to look after your patients like they were your very own family: look for Lyme disease, it is out there.
8 Thursday, 07 April 2011 20:28
MR K F KETTRIDGE
not happy with test in ab.sending blood to igenex usa.on my cost keep you posted kim
7 Wednesday, 30 March 2011 19:00
Brian D. Connell Sr
I started having problems with my knees back in 1996, both of them swelling up. In 2003 I went to see a doctor and have my knee drained. They would swell up about once a year. I was diagnosed with Lyme then, I have spent over $75,000.00 since then, I suffer from Lyme Disease symptoms still and have been trying to see an LLMD or a infectious disease doctor for over 8 years now, I have been given all kinds of excuse's from I live too far away or I was once told to bring $600.00 cash per visit and the doctor would see me. I have never been tested for co-infections and between the pain and chronic sleep disorder and nerve twitching, and so on and on and on, this is the worst thing I have ever been through and I think probably the worst thing is the not knowing and the lack of help just makes this disease so very hard to tolerate. Of course the fact that you can't live on SSD and the snap program and the fact that you can't get out of bed and are ready to lose your house and be homeless doesn't help at the same time, they say Lyme doesn't kill, are they including the suicide rate from this disease?
6 Monday, 14 March 2011 10:51
MR K F KETTRIDGE
still waiting for test to come back from prov.lab ????? kim
5 Tuesday, 11 January 2011 20:28
Heinz J. Mensing, MD
Hello, just some info from a retired pharmacologist and chronic neuroborreliosis victim, over 3 decades (at minimum)... I first started with i.v. ceftriaxone (Rocephin (R)) in 1993, on a clinical diagnosis (several serological tests were negative). Clear benefit lasted only for weeks, then many symtoms returned, and new ones developed over the years following. After a second course of ceftriaxone in 1995 I read of additional (oral) doxycycline benefit after ceftriaxone. When I tried that in January of 1996 my cardiac arrhythmia (very frequent VES) disappeared after 5 years of cardiac irregularity (NO reaction after twice i.v. ceftriaxone): I suspect that B.burgdorferi survives inside cells, where ß-lactam antibiotics like penicillin ... ceftriaxone have no access, but doxy, which is lipophilic and easily crosses cell membranes, unlike penicilline and the like. To make it short: in chronic neuroborreliosis a permanente cure often cannot be achieved. Prof. Preac-Mursic from Munich in the 80's of the last century suggested an interval therapy, which might stimulate immune responses against very slowly multiplying bacteria like borreliae. Over the years I developed the following dosing scheme: Once per month I take a total of 800 mg doxy over just two days (body weight ca. 87kg): 300-100-100-100-100-100 with ca. 8 hour intervals. This way two 50 tablet packages of doxy lasts for about a year. I have not experienced side effects. (Forget "herx": seems to result from fear, maybe stress from "angst", which impairs immune function and will promote bacterial proliferation, cf. stress in MS... Prof. Norbert Satz, Switzerland, denies the existence of a Herxheimer reaction in antibiotic lyme therapy, after thousands of patients treated!) With body weight less than 65..70 kg even 200-100-100-100 mg doxy over two days, that is with ca. 12 (instead of 8) hour dosing intervals, will produce similar concentration curves in blood / tissue / CNS = central nervous system. As far as I know, such a scheme with long intervals of several weeks between the 2day-courses minimizes the risk of bacterial resistance development against doxy (which for B.burgdorferi never has been demonstrated, only for a few other bacteria). Note: doxy should NOT be given to children - could be deposited permanently in growing bones and teeths... After years I tried to expand the interval from 4 to 6 weeks, but had the impression of insufficient efficiency. With this dosing scheme I have been almost symptom free for many years by now, at minimal cost and with practically no side effects. This would qualify such a scheme for mass therapy - which would be necessary in (Southern) Germany, where I live. Epidemiolgical work here has revealed that prevalence of CHRONIC lyme disease (there is NO spontaneous healing, just like in syphilis...) reaches ca. 25% of the population, that is MILLIONS, at age 50...60 years. IMPORTANT: Note that certain symptoms may disappear quite slowly, over weeks, months - inflammation decay and repair of damage (e.g. long peripheral nerves) can take time, so be patient. The CNS often can circumvent permanent damage (scars, visible in NMR imaging) - but that might take even years. So don't give up early - I know from own experience! One more info: meanwhile there is growing evidence that MS is just a severe form of neuroborreliosis (depending on a genetic predisposition for MS) - and can be "stopped" by an interval dosing scheme as outlined above with doxy or minocycline. Both doxy and minocycline are standard in acne therapy over months, but doxy is preferred because of lower risk of liver damage (which seldomly may develop with CONTINUOUS minocycline dosing over months). This demonstrates that especially doxy is comparably VERY safe, based on decade-long experience in millions of acne patients. With the interval dosing scheme of doxy any risk of severe adverse reactions certainly is reduced even further, to practically "nothing" in my own experience over more than a dozen years. By the way, doxy seems to be effective in many more diseases than lyme and MS (e.g. malaria, rheumatoid arthritis, osteoarthritis... - probably lots more...). Ancient Nubians some 1500 and more years ago in upper Egypt / Sudan fermented sorghum resulting in effective concentrations of tetracycline, the parent structure of doxycycline (which has been modified chemically half a century ago to be better absorbed orally, to stay longer in the body ---> drastically reduced dosing (including dosing intervals), better passage into the CNS...): This shows that such tetracycline antibiotics may be part of normal diet - nothing "unnatural" at all! To me doxycycline is optimized natural tetracycline, with a remarkable safety record over half a century by now. I am confident that seemingly intractable chronic (neuro)borreliosis can be stopped - not with massiv attack but with a "less is more" approach. (Date: 11-1-11, something special...)
4 Friday, 28 May 2010 18:33
Bea Ichiiwa
My daughter has not been diagnosed with positive Lyme disease but all the symptoms point that way and the Drs cannot find anything else wrong with her. It's so frustrating to sit and worry about it everyday and none of the Drs can help us. I can't understand why the Drs won't learn more about it. What can we do to get the Drs to learn more about it?
3 Sunday, 16 May 2010 09:57
Michael -ArcHAnGeL-
Lyme Disease also known as "Masters Disease" known to mimick many other diseases can make more more money for big pharma by treating symptoms than by treating the disease itself! You want "Evidence Based Medicine"? lymecryme.com . What relationship with the military does most IDSA doctors have? Who is Dr. Shy Shing Lo? - maybe read some Patents!
2 Thursday, 13 May 2010 13:17
Miguel Campo
I am in Victoria. I was bitten by a tick in July 2008, developed the classic circular rash, then soon developed classic Lyme Disease symptoms such as profound fatigue, cognitive disfunction, sore wrists, and facial palsy. Two weeks post tick bite, I received antibiotics from a clinic in Sidney and a blood test. My test was negative but another Doctor saw that I was very sick and gave me more antibiotics. After 3 months of antibiotics and still very sick, I was told we had to start looking elsewhere for the source of my brain fog, fatigue, and wrist pain. I did look elsewhere...USA and Mexico for medication. Self treatment is the only way that I still have my job and my family. Certain professionals in the medical community shoud be ashamed and very hard on themselves for casting aside the taxpayer who pays their salary. I understand that our local Doctors only get "water cooler" type talk of Lyme Disease and easily dismiss it but they are expected to do better and not ruin lives and drive people to suicide. "Evidence Based Medicine" should be based on ALL available medical information. Not just older, faulty studies being quoted in newer articles by those who created them. There is much evidence available about Lyme Disease coming out of European and American schools. Maybe someone should read it. Miguel Campo
1 Thursday, 13 May 2010 13:17
Miguel Campo
I am in Victoria. I was bitten by a tick in July 2008, developed the classic circular rash, then soon developed classic Lyme Disease symptoms such as profound fatigue, cognitive disfunction, sore wrists, and facial palsy. Two weeks post tick bite, I received antibiotics from a clinic in Sidney and a blood test. My test was negative but another Doctor saw that I was very sick and gave me more antibiotics. After 3 months of antibiotics and still very sick, I was told we had to start looking elsewhere for the source of my brain fog, fatigue, and wrist pain. I did look elsewhere...USA and Mexico for medication. Self treatment is the only way that I still have my job and my family ... I understand that our local doctors only get "water cooler" type talk of Lyme Disease and easily dismiss it ... "Evidence Based Medicine" should be based on ALL available medical information. Not just older, faulty studies being quoted in newer articles by those who created them. There is much evidence available about Lyme Disease coming out of European and American schools. Maybe someone should read it. Miguel Campo
 

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