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Comments (9)
Lyme Disease in North Lousiana and Arkansas
9
Saturday, 19 May 2012 16:17
Shelyna Rice, NP
My 10 year old son who frequently hunts in Arkansas with his father, developed fever, neck pain, joint aches and malaise. The infectious disease specialist in this area insisted that it was viral illness that would resolve on its own. I diagnosed and treated him for Lyme disease. He is doing well and is back to being his energetic self. I implore all primary care providers to include Lyme disease in the differential when the presenting case is similar to the one I just described. If I had relied on the infectious disease specialist my child's life would have been ruined. I urge you to look after your patients like they were your very own family: look for Lyme disease, it is out there.
alberta lyme prov.test is in neg.
8
Thursday, 07 April 2011 20:28
MR K F KETTRIDGE
not happy with test in ab.sending blood to igenex usa.on my cost keep you posted kim
Lyme Disease
7
Wednesday, 30 March 2011 19:00
Brian D. Connell Sr
I started having problems with my knees back in 1996, both of them swelling up. In 2003 I went to see a doctor and have my knee drained. They would swell up about once a year. I was diagnosed with Lyme then, I have spent over $75,000.00 since then, I suffer from Lyme Disease symptoms still and have been trying to see an LLMD or a infectious disease doctor for over 8 years now, I have been given all kinds of excuse's from I live too far away or I was once told to bring $600.00 cash per visit and the doctor would see me. I have never been tested for co-infections and between the pain and chronic sleep disorder and nerve twitching, and so on and on and on, this is the worst thing I have ever been through and I think probably the worst thing is the not knowing and the lack of help just makes this disease so very hard to tolerate. Of course the fact that you can't live on SSD and the snap program and the fact that you can't get out of bed and are ready to lose your house and be homeless doesn't help at the same time, they say Lyme doesn't kill, are they including the suicide rate from this disease?
thank you for your info and our talk 2 wks ago
6
Monday, 14 March 2011 10:51
MR K F KETTRIDGE
still waiting for test to come back from prov.lab ????? kim
ORAL doxycycline is ok, cheap -- i.v. is NOT necessary!
5
Tuesday, 11 January 2011 20:28
Heinz J. Mensing, MD
Hello, just some info from a retired pharmacologist and chronic neuroborreliosis victim, over 3 decades (at minimum)... I first started with i.v. ceftriaxone (Rocephin (R)) in 1993, on a clinical diagnosis (several serological tests were negative). Clear benefit lasted only for weeks, then many symtoms returned, and new ones developed over the years following. After a second course of ceftriaxone in 1995 I read of additional (oral) doxycycline benefit after ceftriaxone. When I tried that in January of 1996 my cardiac arrhythmia (very frequent VES) disappeared after 5 years of cardiac irregularity (NO reaction after twice i.v. ceftriaxone): I suspect that B.burgdorferi survives inside cells, where ß-lactam antibiotics like penicillin ... ceftriaxone have no access, but doxy, which is lipophilic and easily crosses cell membranes, unlike penicilline and the like. To make it short: in chronic neuroborreliosis a permanente cure often cannot be achieved. Prof. Preac-Mursic from Munich in the 80's of the last century suggested an interval therapy, which might stimulate immune responses against very slowly multiplying bacteria like borreliae. Over the years I developed the following dosing scheme: Once per month I take a total of 800 mg doxy over just two days (body weight ca. 87kg): 300-100-100-100-100-100 with ca. 8 hour intervals. This way two 50 tablet packages of doxy lasts for about a year. I have not experienced side effects. (Forget "herx": seems to result from fear, maybe stress from "angst", which impairs immune function and will promote bacterial proliferation, cf. stress in MS... Prof. Norbert Satz, Switzerland, denies the existence of a Herxheimer reaction in antibiotic lyme therapy, after thousands of patients treated!) With body weight less than 65..70 kg even 200-100-100-100 mg doxy over two days, that is with ca. 12 (instead of 8) hour dosing intervals, will produce similar concentration curves in blood / tissue / CNS = central nervous system. As far as I know, such a scheme with long intervals of several weeks between the 2day-courses minimizes the risk of bacterial resistance development against doxy (which for B.burgdorferi never has been demonstrated, only for a few other bacteria). Note: doxy should NOT be given to children - could be deposited permanently in growing bones and teeths... After years I tried to expand the interval from 4 to 6 weeks, but had the impression of insufficient efficiency. With this dosing scheme I have been almost symptom free for many years by now, at minimal cost and with practically no side effects. This would qualify such a scheme for mass therapy - which would be necessary in (Southern) Germany, where I live. Epidemiolgical work here has revealed that prevalence of CHRONIC lyme disease (there is NO spontaneous healing, just like in syphilis...) reaches ca. 25% of the population, that is MILLIONS, at age 50...60 years. IMPORTANT: Note that certain symptoms may disappear quite slowly, over weeks, months - inflammation decay and repair of damage (e.g. long peripheral nerves) can take time, so be patient. The CNS often can circumvent permanent damage (scars, visible in NMR imaging) - but that might take even years. So don't give up early - I know from own experience! One more info: meanwhile there is growing evidence that MS is just a severe form of neuroborreliosis (depending on a genetic predisposition for MS) - and can be "stopped" by an interval dosing scheme as outlined above with doxy or minocycline. Both doxy and minocycline are standard in acne therapy over months, but doxy is preferred because of lower risk of liver damage (which seldomly may develop with CONTINUOUS minocycline dosing over months). This demonstrates that especially doxy is comparably VERY safe, based on decade-long experience in millions of acne patients. With the interval dosing scheme of doxy any risk of severe adverse reactions certainly is reduced even further, to practically "nothing" in my own experience over more than a dozen years. By the way, doxy seems to be effective in many more diseases than lyme and MS (e.g. malaria, rheumatoid arthritis, osteoarthritis... - probably lots more...). Ancient Nubians some 1500 and more years ago in upper Egypt / Sudan fermented sorghum resulting in effective concentrations of tetracycline, the parent structure of doxycycline (which has been modified chemically half a century ago to be better absorbed orally, to stay longer in the body ---> drastically reduced dosing (including dosing intervals), better passage into the CNS...): This shows that such tetracycline antibiotics may be part of normal diet - nothing "unnatural" at all! To me doxycycline is optimized natural tetracycline, with a remarkable safety record over half a century by now. I am confident that seemingly intractable chronic (neuro)borreliosis can be stopped - not with massiv attack but with a "less is more" approach. (Date: 11-1-11, something special...)
Probable Lyme
4
Friday, 28 May 2010 18:33
Bea Ichiiwa
My daughter has not been diagnosed with positive Lyme disease but all the symptoms point that way and the Drs cannot find anything else wrong with her. It's so frustrating to sit and worry about it everyday and none of the Drs can help us. I can't understand why the Drs won't learn more about it. What can we do to get the Drs to learn more about it?
The paralax view
3
Sunday, 16 May 2010 09:57
Michael -ArcHAnGeL-
Lyme Disease also known as "Masters Disease" known to mimick many other diseases can make more more money for big pharma by treating symptoms than by treating the disease itself! You want "Evidence Based Medicine"? lymecryme.com . What relationship with the military does most IDSA doctors have? Who is Dr. Shy Shing Lo? - maybe read some Patents!
One more victim
2
Thursday, 13 May 2010 13:17
Miguel Campo
I am in Victoria. I was bitten by a tick in July 2008, developed the classic circular rash, then soon developed classic Lyme Disease symptoms such as profound fatigue, cognitive disfunction, sore wrists, and facial palsy. Two weeks post tick bite, I received antibiotics from a clinic in Sidney and a blood test. My test was negative but another Doctor saw that I was very sick and gave me more antibiotics. After 3 months of antibiotics and still very sick, I was told we had to start looking elsewhere for the source of my brain fog, fatigue, and wrist pain. I did look elsewhere...USA and Mexico for medication. Self treatment is the only way that I still have my job and my family. Certain professionals in the medical community shoud be ashamed and very hard on themselves for casting aside the taxpayer who pays their salary. I understand that our local Doctors only get "water cooler" type talk of Lyme Disease and easily dismiss it but they are expected to do better and not ruin lives and drive people to suicide. "Evidence Based Medicine" should be based on ALL available medical information. Not just older, faulty studies being quoted in newer articles by those who created them. There is much evidence available about Lyme Disease coming out of European and American schools. Maybe someone should read it. Miguel Campo
+1 victim
1
Thursday, 13 May 2010 13:17
Miguel Campo
I am in Victoria. I was bitten by a tick in July 2008, developed the classic circular rash, then soon developed classic Lyme Disease symptoms such as profound fatigue, cognitive disfunction, sore wrists, and facial palsy. Two weeks post tick bite, I received antibiotics from a clinic in Sidney and a blood test. My test was negative but another Doctor saw that I was very sick and gave me more antibiotics. After 3 months of antibiotics and still very sick, I was told we had to start looking elsewhere for the source of my brain fog, fatigue, and wrist pain. I did look elsewhere...USA and Mexico for medication. Self treatment is the only way that I still have my job and my family ... I understand that our local doctors only get "water cooler" type talk of Lyme Disease and easily dismiss it ... "Evidence Based Medicine" should be based on ALL available medical information. Not just older, faulty studies being quoted in newer articles by those who created them. There is much evidence available about Lyme Disease coming out of European and American schools. Maybe someone should read it. Miguel Campo
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